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Ciclo de palestras: Personal Genome Project

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"Personal Genome Project: Creating a Global Commons of Human Data" , Jason Bobe, PhD

Abstract: Advancing our basic understanding of human biology and health will require extensive research on highly reidentifiable, integrated datasets composed of genomic, environmental and trait data contributed and curated by millions of volunteers around the world. To assist with this, participants in the Personal Genome Project choose to make their data public through the “open consent” framework that excludes absolute promises of privacy. Their contribution of public data and tissue samples facilitates both scientific discovery and standardization of methods. I will present the "open consent" framework, its implementation at the Harvard PGP and a growing number of sites around the world.

 

"Então veio o que eu não poderia explicar: data, expectations and personal genomes" , Misha Angrist, PhD

Abstract: It is now more than two years since the first of several dozen high-quality Personal Genome Project genome sequences were made publicly available online. While the sequence data continue to accumulate exponentially, the PGP has--sometimes unwittingly--served as a series of smaller social experiments in genetic determinism, privacy, confidentiality, open access data sharing, identifiability, clinical utility, stigma, cultural norms, deliberative democracy and the many meanings of "omic" information and personal health data. I reflect on the origins of the PGP, its evolution, the challenges it poses and faces, and what the future might hold as personal genomes become more affordable (and more mundane), and the ethos of open consent is iteratively tweaked and tested in more places by more people.

 

About Jason Bobe

jasonbobe_headshot

Jason Bobe serves as the Executive Director of PersonalGenomes.org and Director of Community for the Personal Genome Project based out of George Church’s lab at Harvard Medical School. The Personal Genome Project seeks to encourage the thoughtful development of personal genomics technology and practices by building frameworks for prototyping and evaluation at increasing scales.

Jason is co-founder of DIYbio.org, an organization that aims to help make biology a worthwhile pursuit for citizen scientists and amateur biologists. DIYbio is fast becoming the organizational hub for amateur biologists worldwide, uniting the movement’s participants through its website, online forums, blog and local chapters.

He has also worked as a Business Development Consultant for OpenWetWare.org, as Director of Business Development at DNA Direct, and as an independent consultant. He has attended both the University of Colorado at Boulder and the Kelley School of Business at Indiana University. He is interested in how emerging biotechnologies and the web are redefining the relationships between scientific research communities, communities from the general public, and the network of actors in-between.



About Angrist Misha

Misha Angrist, PhD -Assistant Professor of the Practice, Institute for Genome Sciences & Policy

"I suspect that most of our children will have genome scans as a routine part of their health care, to say nothing of their social lives. I want to understand what that world might look like."

Misha Angrist is interested in the intersection of genomes and society, especially as it is manifest in the nascent personal genomics movement. He is investigating personal genomics from technological, commercial and individual perspectives. His courseload includes Science in the Media; he has a particular interest in narrative nonfiction devoted to genomics and other life sciences.

Angrist holds a PhD in genetics from Case Western Reserve University, an MS in genetic counseling from the University of Cincinnati, and an MFA from the Bennington Writing Seminars.

Last Updated on Friday, 03 May 2013 14:03
 

Inscrições para o VI Workshop CInAPCe acontecem até 04 de agosto

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Estão abertas as inscrições para o VI Workshop CInAPCE (Cooperação Interinstitucional de Apoio a Pesquisas sobre o Cérebro), até o dia 04 de agosto. O evento será realizado entre os dias 14 e 17 de agosto, na Faculdade de CIências Médicas da UNICAMP em Campinas. Este ano, haverá um número limitado de isenção da taxa de inscrição para alunos que possuem bolsas CNPq, CAPES ou qualquer outro auxílio que não seja da FAPESP, e que não moram em Campinas. Os interessados devem entrar em contato com a secretaria do CInAPCe pelo email:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Mais informações pelo site: http://www.lepedic.com.br/eventos/cinapce2012

Os cursos pré workshop serão , o valor  é R$ 30,00 (com exceção dos cursos Divulgação Científica e Sequência de Pulso, os quais os valores não foram divulgados). Os cursos podem ser pagos no dia. 

  • Hipóxia e SNC (total 20 vagas) - dia 14 - 14 às 17h no Depto. de Neurologia
  • Free Surfer (total 20 vagas) - dia 14 - 14  às 17h no Lab. Neuroimagem 
  • NIRx (total 10 vagas) - dia 17 das 14 às 17h no Lab. de Física Médica 
  • Divulgação Científica - no dia 14 das 14 às 17h no LABJOR/NUDECRI (valor não divulgado)
  • Programação de sequência de pulso - Dias 13 e 14/08 das 07 às 19:00 hs no Lab. Neuroimagem (valor não divulgado, favor consultar Thiago Venancio e-mail:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it )
Last Updated on Tuesday, 31 July 2012 12:59
 

Brasileiros são premiados pela American Academy of Neurology

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 Agência FAPESP – Cinco pesquisadores brasileiros tiveram seus trabalhos premiados durante a 64ª Reunião Anual da American Academy of Neurology, realizada entre os dias 21 e 28 de abril na cidade de Nova Orleans, nos Estados Unidos. 

Ao todo, 17 cientistas foram destacados no evento, que é o mais importante da área de neurologia. Todos os brasileiros são da Faculdade de Ciências Médicas da Universidade Estadual de Campinas (Unicamp) e foram premiados na categoria “International Scholarship Award”.

Last Updated on Friday, 25 May 2012 10:02 Read more...
 

Site Statistics


Data updated in November 21st, 2016

Number of users: 100

Number of Institutions: 6

Number of equipment: 7

Total number of reserves:

Year 2012 2013 2014 2015 2016 Total
Reserves 422 619 747 270 270 2328

Number of reserves per month:

 Agendamento_por_mes

Distribution of Equipment use per year:

Agendamento_por_equipamento

* The OpenArray System schedule was withdrawn from January 1st, 2016

 

ASHG 2012

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O congresso da American Society of Human Genetics (ASHG), será realizado em São Francisco entre os dias 6 a 10 de novembro. Lembrando que os resumos dos trabalhos científicos deverão ser submetidos até o dia 4 de Junho de 2012. Para mais informações, clique aqui

 
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